The ALS Therapy Alliance - Researching a Cure

Follow our journey as we blog about the leading-edge research the ALS Therapy Alliance and its partners is conducting. Meet our campaign spokespeople and learn more about how their families are living with the disease and remaining hopeful that a cure will be found. We welcome your comments and feedback!

Traci Bisson

Steve Gleason an inspiration to us all!

Steve Gleason

I was very excited to see the story about Steve Gleason that aired during the Super Bowl's pre-game show this past Sunday.

It was a short documentary from Sports Illustrated about Steve's battle with ALS (amyotrophic lateral sclerosis or Lou Gehrig's Disease).

Millions of people were educated about this devastating disease that has not received as much media attention as other, more common diseases.

I encourage you to learn more about Steve and his courageous fight. Even through all of this, Steve, like so many others afflicted with this disease, is letting his voice be heard for as long as he can speak.

Learn more...>

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Traci Bisson

Another successful Researching a Cure fundraising campaign with CVS/pharmacy comes to an end

Researching a Cure campaign raises $4.3 million for ALS research

Seen in the photo from left to right are: Boston Red Sox Ball Girl; President and Chief Executive Officer of CVS Caremark Larry Merlo; Executive Vice President of CVS Caremark Jon Roberts; Former NFL Football Player, ALS patient and Celebrity Spokesperson of the CVS/pharmacy "Researching a Cure" campaign Kevin Turner; President of ALS Therapy Alliance Dr. Robert Brown, Jr.; Directors of ALS Therapy Alliance Dr. Merit Cudkowicz, Dr. Larry Hayward and Dr. Robert Horvitz; Regional Director of Real Estate for CVS Caremark, ALS patient and Co-chair of the CVS/pharmacy "Researching a Cure" campaign Treg Charlton; ALS patient and Co-chair of the CVS/pharmacy "Researching a Cure" campaign Barry Winovich; and Boston Red Sox Ball Girl. (Photo Credit: Sue Bruce Photography)


September 1 marked the end of the 2011 Researching a Cure fundraising campaign held each year at CVS/pharmacy locations throughout the U.S.  A huge thanks to the colleagues at, and customers of, CVS who helped us raise $4.3 million this year for ALS research.

Members from our Board of Directors, CVS executives, and ALS co-spokespeople and their families all came together at Fenway Park in Boston, MA to celebrate the occasion and create awareness of ALS.

To learn more about the results of this year's fundraising campaign, please visit our Media Room.

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Traci Bisson

"At the ALS Therapy Alliance, we want to put ourselves out of business..."

Going out of business
This phrase, made popular by Dr. Robert Brown, has been said during several media interviews. It is a saying that gets people talking and asking questions.

Recently, I received an email from a supporter. He had read this line in an article entitled "Moving Toward a Cure" featured in CVS Caremark's Connections magazine. He was concerned that is was a misprint.

Here is the entire quote from the article:

“There aren't words to adequately express our gratitude to CVS Caremark. They have catalyzed a phenomenal set of initiatives on a scale that has allowed us to complete several flagship projects,” says ATA President Dr. Robert Brown. “At ATA, we want to put ourselves out of business, and CVS Caremark is helping us do that.”

Here was my response to the email inquiry:

"Yes, that is a classic line that Dr. Brown often says in interviews. If the ATA goes out of business that means we have found a cure. The more money we raise through our partnership with CVS, the more money we can give to research, which increases our chances of finding a cure – hence putting us out of business. I think it is the only time an organization would admit it wants to go out of business." 
 
Please let us know your thoughts in the comments below.
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Traci Bisson

Lyme Disease Found in 100 Percent of 150 ALS Patients

Lyme Disease

Read this informative article about Lyme Disease and its connection to ALS.

Learn more about Dr. Sponaugle's connection to our partner Kevin Turner, founder of the Kevin Turner Foundation.

To read article, click here...> 

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Traci Bisson

Are you a smoker? Here is another reason to stop!

woman_smoking

In a recent study conducted by Dr. Hao Wang of the Harvard School of Public Health in Boston, it was discovered that Lou Gehrig's Disease, or amyotrophic lateral sclerosis (ALS), may be more likely to strike you if you're a cigarette smoker.

Dr. Wang and colleagues analyzed five long-term studies involving more than 1.1 million participants, of whom 832 had ALS. The follow-up among the studies ranged from seven to 28 years.

The risk of developing ALS also increased with the number of pack-years smoked, the study says.

To read the full article, click here...>

 



 

 

 

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