The ALS Therapy Alliance - Researching a Cure
Follow our journey as we blog about the leading-edge research the ALS Therapy Alliance and its partners is conducting. Meet our campaign spokespeople and learn more about how their families are living with the disease and remaining hopeful that a cure will be found. We welcome your comments and feedback!
This is an inspiring story about Greg Merfeld who has a relatively rare form of the disease known as familial ALS. His mother discovered through her genealogy work that 20 people on Greg's father's side of the family had the disease.
Because of this, his children have a 50 percent chance of getting ALS. This notion led Greg to start thinking not so much about a cure for himself, but for his two teenage children.
He did a clinical trial for 12 months, but at the end of it, decided to try something else. He decided to work towards setting up a scholarship fund for children of people with ALS.
The scholarship has $175,000 in the bank and $100,000 more in pledges. Greg is working with the Ventura County Community Foundation to help administer the scholarship.
To learn more about Greg's amazing mission and this fund, please click here...>
About the author
